Three and a half months post radiation therapy for tonsil cancer.
No more feeding tube! It was removed today. It was a very simple and quick procedure. The Nurse sucked the air and liquid out of the balloon through the little orange valve on the tube with a syringe. Then it just slid right out. There was a little sting but not bad at all. The whole process took less than a minute.
Since the last radiation treatment my taste has improved considerably. I would say it is probably 80%+ from where it was pre radiation treatment. Fruits and juices taste very sour but are improving. Last week I couldn’t drink orange juice but I had a glass this morning. It was a pretty sour but got through it. I ate a plate of shrimp and scallop fettuccine alfredo from a local Italian restaurant two days ago and it was fantastic. It tasted just as I remembered. A couple of months ago I remember thinking this day would never come.
I can eat just about anything I want now. Tonight I had a chili dog which actually tasted better than I remembered.
The only issue I have with eating has been that after several bites there is some scratchiness in my throat. A month ago it would be too painful to swallow more than a bite or two of anything, but that has improved week by week. The recovery is slower than one would expect but recovery is happening. With a typical illness or injury you can see improvement day by day. I have learned to measure my recovery from cancer treatment by the week.
I started out about a month ago with a scrambled egg. I could only eat 2 small bites before it was too painful to continue. The next week I ate the whole egg but couldn’t do a second one. Now, I can eat a 3 egg omelet with cheese. I still can’t handle meat in it but will continue adding stuff until eventually it’ll be loaded. Tomato sauces and anything acidic irritates my throat but it’s getting better.
Saliva production is improving. I still have dry mouth and carry water most of the time but if I forget it it’s tolerable. I still can’t eat anything without a drink at the ready. Foods that are wet or have sauces or gravy are the easiest. Steak is very hard to break down. Chewing a bite of steak, even a good tender cut with a gallon of water, seems to take for ever. It feels like I’m burning more calories chewing than I’m taking in. Eventually my jaws get tired and I move on to something else. It’s just not worth the trouble. Maybe in a few weeks or months it will improve. I hope so because who doesn’t love a good steak.
I have eaten honey barbecue chicken wings this week and managed to get 3 down before the sauce burned my throat. It was definitely worth the pain. Baked fish is probably the easiest meat to eat.
It has been 10 weeks since my last radiation treatment. I guess it was overly optimistic of me to think that I’d be back to normal by now. I do feel much better and have more energy and fewer episodes of fatigue. I’m also maintaining my weight with the help of a feeding tube, although I’m 20 lbs lighter than when I started treatments. Things are definitely improving but at a much slower pace than I had hoped.
I have much of my taste back but textures of foods feel all wrong. My throat gets very irritated if I try to swallow any food. It’s also very difficult to get anything other than liquids down. It feels like my throat has shrunk and it takes a lot of water to help it down due to lack of saliva production. I’m starting to eat more but the throat pain limits my intake.
I need to be able to eat enough to maintain my weight without supplementing with the feeding tube so I can finally have it removed. It’s strange how some things taste exactly like they did before but now are not enjoyable at all. I don’t have cravings for anything anymore. I can’t wait to start enjoying food again, eat full time and lose the tube.
When this started I was strongly opposed to getting a feeding tube. Now I realize I couldn’t have made it through this without it. It allowed me to pump in all of my calories and nutrition which made healing possible. It really hasn’t negatively impacted my daily activities. As long as I tape it down good, so it doesn’t get snagged on anything, it doesn’t get in the way.
I saw the ENT last week who said that everything looks good and is healing normally. I’m scheduled for a PET scan on November 14th. This will be at 12 weeks post treatment. Hoping all goes well with that! I’m really looking forward to getting back to work. I’m so lucky to work for a great company. The management and my fellow employees at Frye-Williamson have been super supportive. I can’t thank them enough.
I feel like I’ve turned a corner. The burns on my neck are starting to heal but still there, my throat is not as sore as it was but still uncomfortable. I feel much better than last week. I have good days followed by bad ones which is weird. It’s more of a two step forward one step back type of progression. It is slow. The improvement from one day to the next isn’t noticeable but week to week it is.
last week I put salt in my mouth to see if I could taste it. I followed that with sugar. I couldn’t taste either of them. They both tasted like I had sand in my mouth. I did it again today and the taste was very faint but I could definitely tell the difference between them. This is really exciting. The sooner I can start eating, the sooner I can get rid of the feeding tube and start getting back to normal.
Treatments are over but the burns seem to be getting worse along with the way I feel. I’m told I just need to tough it out for a couple of weeks and I’ll turn the corner and notice some improvement. It can’t come fast enough.