10 Weeks Post Radiation Treatment

It has been 10 weeks since my last radiation treatment. I guess it was overly optimistic of me to think that I’d be back to normal by now. I do feel much better and have more energy and fewer episodes of fatigue. I’m also maintaining my weight with the help of a feeding tube, although I’m 20 lbs lighter than when I started treatments. Things are definitely improving but at a much slower pace than I had hoped.

I have much of my taste back but textures of foods feel all wrong. My throat gets very irritated if I try to swallow any food. It’s also very difficult to get anything other than liquids down. It feels like my throat has shrunk and it takes a lot of water to help it down due to lack of saliva production. I’m starting to eat more but the throat pain limits my intake.

I need to be able to eat enough to maintain my weight without supplementing with the feeding tube so I can finally have it removed. It’s strange how some things taste exactly like they did before but now are not enjoyable at all. I don’t have cravings for anything anymore. I can’t wait to start enjoying food again, eat full time and lose the tube.

When this started I was strongly opposed to getting a feeding tube. Now I realize I couldn’t have made it through this without it. It allowed me to pump in all of my calories and nutrition which made healing possible. It really hasn’t negatively impacted my daily activities. As long as I tape it down good, so it doesn’t get snagged on anything, it doesn’t get in the way.

I saw the ENT last week who said that everything looks good and is healing normally. I’m scheduled for a PET scan on November 14th. This will be at 12 weeks post treatment. Hoping all goes well with that! I’m really looking forward to getting back to work. I’m so lucky to work for a great company. The management and my fellow employees at Frye-Williamson have been super supportive. I can’t thank them enough.

I managed 3 or 4 bites before I had to give up.

4th of July Weekend

  • Chemo- 3 of 7
  • Radiation- 9 of 33
  • Weight- 170

I got a break from radiation on the 4th of July which was nice. My brother grilled burgers, brats and hotdogs and everyone brought a dish. There were about 20 people there. Unfortunately, the nausea from the chemo was at its peak on Thursday but I managed to wrestle down a hotdog. It didn’t really taste like a hotdog but I ate it anyway. Everything tastes bad now.

Last week milk tasted spoiled but now it has no taste at all, so, I’m back to drinking milk. I drank coffee every day for 30 years but suddenly I hate the smell and taste of it now. I figured out today that Monster Mean Bean in a can goes down pretty good so I got jacked up on that this afternoon and mowed the lawn.

Today is the best I’ve felt in a week. I’m on a complete liquid diet now and expect that to last a couple of months. I need to stay in the neighborhood of 2000 calories to maintain my weight. That’s around 6 Ensures per day. Now that I’m back on milk, I can use Carnation Breakfast mix which I like.

Tomorrow is Tuesday which brings another round of back to back chemo and radiation. After tomorrow I’ll only have 3 more of those back to back days left. My last chemo is on Monday July 29th. I’ll be so glad to get that part behind me although I’ll still have several more rounds of radiation left.