It has been 10 weeks since my last radiation treatment. I guess it was overly optimistic of me to think that I’d be back to normal by now. I do feel much better and have more energy and fewer episodes of fatigue. I’m also maintaining my weight with the help of a feeding tube, although I’m 20 lbs lighter than when I started treatments. Things are definitely improving but at a much slower pace than I had hoped.
I have much of my taste back but textures of foods feel all wrong. My throat gets very irritated if I try to swallow any food. It’s also very difficult to get anything other than liquids down. It feels like my throat has shrunk and it takes a lot of water to help it down due to lack of saliva production. I’m starting to eat more but the throat pain limits my intake.
I need to be able to eat enough to maintain my weight without supplementing with the feeding tube so I can finally have it removed. It’s strange how some things taste exactly like they did before but now are not enjoyable at all. I don’t have cravings for anything anymore. I can’t wait to start enjoying food again, eat full time and lose the tube.
When this started I was strongly opposed to getting a feeding tube. Now I realize I couldn’t have made it through this without it. It allowed me to pump in all of my calories and nutrition which made healing possible. It really hasn’t negatively impacted my daily activities. As long as I tape it down good, so it doesn’t get snagged on anything, it doesn’t get in the way.
I saw the ENT last week who said that everything looks good and is healing normally. I’m scheduled for a PET scan on November 14th. This will be at 12 weeks post treatment. Hoping all goes well with that! I’m really looking forward to getting back to work. I’m so lucky to work for a great company. The management and my fellow employees at Frye-Williamson have been super supportive. I can’t thank them enough.
I feel like I’ve turned a corner. The burns on my neck are starting to heal but still there, my throat is not as sore as it was but still uncomfortable. I feel much better than last week. I have good days followed by bad ones which is weird. It’s more of a two step forward one step back type of progression. It is slow. The improvement from one day to the next isn’t noticeable but week to week it is.
last week I put salt in my mouth to see if I could taste it. I followed that with sugar. I couldn’t taste either of them. They both tasted like I had sand in my mouth. I did it again today and the taste was very faint but I could definitely tell the difference between them. This is really exciting. The sooner I can start eating, the sooner I can get rid of the feeding tube and start getting back to normal.
Treatments are over but the burns seem to be getting worse along with the way I feel. I’m told I just need to tough it out for a couple of weeks and I’ll turn the corner and notice some improvement. It can’t come fast enough.
3 more Chemo treatments and 23 Radiation sessions left. Salivary glands are pretty much useless. I have dry mouth all of the time and wake up with my throat stuck together. It’s weird as hell.
I did the radiation first today followed by the chemo. This works so much better because after chemo I’m completely wiped out. I definitely wouldn’t have felt like being trapped under the mask for 20 minutes after my chemo treatment today.
Business as usual today. Went to work and felt great all day. It was nice to be back in my old routine at work. Had lunch with my brother like I’ve done on most days for the last several months. While at lunch I got the call from Dr, Ferrero’s office to schedule my first Radiation appointment. The appointment is set for Tuesday. I’ll get my chemo treatment Tuesday morning then go to Radiation in the afternoon. Radiation will be every weekday after that for 33 sessions.
It’s crunch time! Not looking forward to this at all, but looking forward to getting through it.